🦋 June 1, 2026 · World Hypopara Day
Presented by
Hypopara Life

Hypopara Life

First Annual World Hypoparathyroidism Awareness Day Walk

"We might not be able to walk far, but we can walk together."

Because you have to live your best life while hypopara.

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Join the Walk🦋 Support Hypopara Life

🦋 The Spirit of the Walk

Dancing butterflies — we might not be able to walk far, but we can walk together

"We might not be able to walk far, but we can walk together."

Introducing

Hypopara Life

Because you have to live your best life while hypopara.

Hypopara Life Logo

Hypopara Life is a new community movement born from the belief that a hypoparathyroidism diagnosis is not the end of living fully — it is the beginning of a different, courageous kind of life.

Co-Founded by Bari Vapnek — columnist, advocate, and public speaker — Hypopara Life transforms personal struggle into a roadmap for others. Through honest storytelling, community, and action, we ensure no patient walks this road alone.

"My struggles are your guidebook. Navigating hypoparathyroidism, clinical trials, and adversity — honestly, not censored. Your journey doesn't have to start from zero."

— Bari Vapnek, Co-Founder of Hypopara Life

Visit Bari's Full Story
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Investment to Tralyte
June 1, 2026

About the Walk

When

Monday, June 1, 2026

World Hypoparathyroidism Awareness Day

Where

In Your Community

Walk locally or virtually — every step counts

Who

Everyone is Welcome

Patients, caregivers, families, friends & advocates

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"We might not be able to walk far, but we can walk together."

This walk is not about distance. It is about presence, solidarity, and showing the world that the hypopara community is strong, visible, and full of life. Whether you walk one block or one mile — in person or virtually — your steps matter.

Community Walk Map

🌍 Walkers Around the World

Every butterfly on this map is a person with hypoparathyroidism — or someone who loves one — walking with us on June 1st. Register on RunSignUp and add your city to put yourself on the map. Find someone near you and walk together.

🦋 Be the first to put your city on the map! Register above and add your city/state.

Map updates as new walkers register. Pins show cities where participants have signed up.

Our Story & Mission

The Walk That Has Never Existed — Until Now

A community that has waited 14 years for a moment to walk together finally has one.

2011

World Hypoparathyroidism Awareness Day Is Born

Liz Glenister of Parathyroid UK founded World Hypoparathyroidism Awareness Day (WHAD) — giving a global voice to a condition that had long been invisible. For the first time, patients around the world had a day to call their own.

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2011 – 2025

14 Years of Awareness — But No Walk

For 14 years, patients, caregivers, and advocates marked WHAD with posts, ribbons, and awareness campaigns. The community grew. The voices got louder. But one thing was always missing — a moment to physically come together, side by side, and show the world we exist.

JUNE 1, 2026

The First Annual Hypopara Life Walk

Co-founded by Bari Vapnek — columnist, advocate, and Brave Butterfly Bari — the First Annual World Hypoparathyroidism Awareness Day Walk is born. Not a marathon. Not a race. A walk. Because we might not be able to walk far, but we can walk together.

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Our Mission

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Unite

Bring the global hypopara community together — in person and virtually — for the very first time through a shared walk.

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Raise Awareness

Show the world that hypoparathyroidism is real, it is serious, and the people living with it are strong, resilient, and unstoppable.

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Drive Change

Help accelerate the development of Tralyte Health's at-home calcium monitor — the first device designed to give hypopara patients real-time calcium insights. Supporters can invest in Tralyte Health through Wefunder, becoming part of the effort to bring this technology to patients.

"We might not be able to walk far, but we can walk together."

— The heart of the Hypopara Life Walk

Dancing butterflies around the globe — Hypopara Life community logo

Hypopara Life — a global community united by hope 🌍🦋

Understanding Hypopara

Why This Walk Matters

Hypoparathyroidism (hypopara) is a rare condition where the parathyroid glands produce too little parathyroid hormone (PTH), causing dangerously low calcium levels in the blood.

Calcium levels can crash within hours, triggering muscle spasms, neurological symptoms, and emergency room visits. Patients live in constant uncertainty — every single day on a razor's edge.

Yet despite affecting 100,000 Americans and 900,000 people worldwide, hypopara remains largely unknown, underfunded, and misunderstood.

"These patients live every single day on a razor's edge. Hypopara management too often becomes emergency-driven, and it doesn't have to be that way."

— Laurie Head, Co-founder, Tralyte Health

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Rapid Calcium Fluctuations

Calcium levels can drop dangerously within hours, requiring immediate action.

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Emergency-Driven Care

Without real-time monitoring, patients rely on ER visits and delayed lab results.

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Neurological Impact

Low calcium causes muscle spasms, brain fog, tingling, and seizures.

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Rare & Overlooked

Despite affecting nearly 1 million people worldwide, hypopara receives little attention or research funding.

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Living Fully is Possible

With the right support, community, and tools, hypopara patients can and do live their best lives.

How Your Support Helps

Supporting Tralyte Health

Tralyte Health is a patient-centered medtech startup developing a portable calcium monitor. Supporters who wish to help advance this device can invest in Tralyte Health through the Tralyte Health Wefunder campaign. Your investment helps accelerate engineering, testing, and clinical readiness.

Tralyte Health At-Home Calcium Monitor

A Glucose Monitor — But for Calcium

Tralyte Health, a Richmond, VA-based startup, is developing a portable, fingerstick-based calcium monitoring device — designed to give hypopara patients real-time calcium readings at home, without a lab visit.

The device is portable and will include a smartphone app. A tiny blood sample produces a result quickly. Clinical testing is planned for 2027. The device design is still in active development — the final form will be portable, though the exact design is still being refined.

"If we can give them reliable information at home, it changes everything about how they manage their lives."

— Laurie Head, Co-founder, Tralyte Health

Learn More at tralytehealth.com
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You Walk

Show your support for the hypopara community by joining the walk — in person or virtually on June 1st.

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You Invest (Optional)

If you want to help bring real-time calcium monitoring to patients, you can invest in Tralyte Health on Wefunder.

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Innovation Advances

Investments help move the device toward clinical testing and patient use, transforming hypopara care.

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Join the Walk

Register to walk in person in your community, or join us virtually from anywhere in the world. Every step — no matter how small — is a step for the hypopara community.

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In-Person Walk

Walk in your local community on June 1st. Share your photos with #HypoparaLife.

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Virtual Walk

Can't attend in person? Walk anywhere — your backyard, your block, your hallway. You belong here.

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Official Registration

Registration is handled through RunSignUp — our official event platform. Click below to register for the walk, choose your participation type, and secure your spot!

Register on RunSignUp

Opens in a new tab · Free to register · All are welcome

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Invest in Tralyte Health

Help bring the world's first at-home calcium monitor to patients everywhere. You can support this breakthrough by investing in Tralyte Health on Wefunder. Your investment helps accelerate engineering, testing, and future clinical trials.

💡 Invest on Wefunder
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Support the Movement

Stand with the Hypopara Life community movement. Your support helps Bari continue advocating, storytelling, and ensuring no hypopara patient walks this road alone.

🤝 Support Hypopara Life

Registration is free. All are welcome. This is an investment opportunity, not a charitable donation.

Participant Agreement

Walk Waiver & Release

Please read and acknowledge before participating in the walk.

Hypopara Life

Hypopara Life

First Annual World Hypoparathyroidism Awareness Day Walk

Participant Waiver, Release of Liability & Assumption of Risk

June 1, 2026

Event Name: First Annual World Hypoparathyroidism Awareness Day Walk
Presented by: Hypopara Life
Date: June 1, 2026  |  Beneficiary: Tralyte Health

1. Assumption of Risk

I, the undersigned participant, acknowledge that participation in the Hypopara Life Walk ("the Event") involves physical activity and certain inherent risks, including but not limited to: physical exertion, falls, contact with other participants, and weather-related conditions. I am voluntarily participating in this Event with full knowledge of the risks involved.

2. Medical Acknowledgment

I represent that I am physically capable of participating in a walking event. I acknowledge that hypoparathyroidism and related conditions may affect my physical capacity. I have consulted with my physician or healthcare provider prior to participating, or I accept full responsibility for choosing to participate without doing so. I agree to walk at my own pace and to stop if I feel unwell.

3. Release of Liability

In consideration of being permitted to participate in the Event, I hereby release, waive, discharge, and covenant not to sue Hypopara Life, its organizers, volunteers, sponsors (including Tralyte Health), and any affiliated individuals or entities (collectively, "Released Parties") from any and all liability, claims, demands, actions, or causes of action arising out of or related to any loss, damage, injury, or death that may be sustained by me while participating in the Event, whether caused by the negligence of the Released Parties or otherwise.

4. Virtual Participants

Participants choosing to walk virtually (from their own location) acknowledge that Hypopara Life has no control over the environment in which they walk. Virtual participants assume full responsibility for their safety and the safety of their surroundings during their walk.

5. Photo & Media Release

I grant Hypopara Life and its representatives permission to photograph, film, or record my participation in the Event and to use such images or recordings for promotional, educational, or advocacy purposes across print, digital, and social media platforms, without compensation.

6. Emergency Medical Authorization

In the event of a medical emergency, I authorize Event organizers and volunteers to seek emergency medical treatment on my behalf. I understand that Hypopara Life is not responsible for any costs associated with such treatment.

7. Indemnification

I agree to indemnify and hold harmless the Released Parties from any loss, liability, damage, or cost they may incur due to my participation in the Event, whether caused by my negligence or otherwise.

8. Governing Law

This agreement shall be governed by and construed in accordance with the laws of the United States. If any provision of this waiver is found to be unenforceable, the remaining provisions shall remain in full force and effect.

By signing below (or checking the acknowledgment box), I confirm that I have read this waiver in its entirety, that I understand its terms, and that I am signing it freely and voluntarily. If signing on behalf of a minor, I represent that I have the legal authority to do so.

Online Acknowledgment

Download PDF Waiver

Download the PDF, print, sign, and bring to the walk — or complete the online acknowledgment above.

Official Walk Merchandise

Wear the Walk

Every shirt sold helps spread awareness. Rock your Hypopara Life pride on walk day and every day after.

Front — Left Chest
T-shirt front badge

Psychedelic badge — 1st Annual World Hypopara Awareness Day · Hypopara Life

Back — Full Print
T-shirt back design — dancing butterflies

6 dancing butterflies — each unique, each celebrated, all walking together

Official Walk T-Shirt

Unisex · Sizes XS–3XL · Multiple colors available

$30.00

A portion of proceeds supports Tralyte Health 🦋

Available Colors

How to order: Shirts are printed on demand. Click below to be notified when the store opens, or email us directly to pre-order your size and color.

Full online store coming soon · Print-on-demand · No inventory needed · Ships worldwide

🚀 Coming Soon

Hypopara Life
WHAD Walk App

Your walk companion — right in your pocket. Track your steps, connect with the global hypopara community, share your walk day moments, and stay updated on all things Hypopara Life.

📍Track your walk steps & distance
🦋Connect with the community
📸Share your walk day photos
🔔Event updates & reminders

App currently in development — register for the walk to be notified when it launches!

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Spread the Word

Share the walk with your community, your social media, and everyone who needs to know that the hypopara community walks together.

#HypoparaLife#HypoparaWalk#WorldHypoparaDay#WalkTogether#TralyteHealth

Tag us on social media and share your walk photos on June 1st, 2026!